Low Ebb

It’s a feeling that I won’t deny. Yes, some days I feel totally spent and unable to cope. Of course, it’s often on these days that Jacquelynn feels much the same (because like attracts and creates like!). This creates a spiral descent, a Coriolis-effect flushing of all hope for the day right down the cosmic shitter.


As terrific a day as yesterday was, today seems destined for the sewage treatment plant.


Honestly, I don’t know how much longer I can be “The Strong One”. We’ve had difficulties recently (one reason for my silence here), but I’ve found my strength every time and even come to the realization that many of them were inarguably my fault. My insecurities and fears and, yes, bitterness, have surfaced many times, making already tense situations SO much worse and driving Jacquelynn more than once into tears and worse.

So, I’ve found ways to face those fears and insecurities head-on and come to grips with them. I have, through meditation, prayer, and many hours of self-talk faced many demons these past few weeks. I feel as if I’ve quelled most of them, too.

But I’m still so fucking tired.

How many more days can I tell her six times that it’s time for her pills and endure her sagging shoulders and choked-back tears. She’s tired too, you know. As hard as I’m working to help, all the real work is on her shoulders, and they aren’t particularly broad or robust shoulders these days. So there are days and weeks in which she just feels so defeated and tired of the endless work, and I certainly can’t blame her for that.

She needs me, and I need her, but I’m still SO fucking tired.

Not sleepy. I get halfway decent sleep probably about half the time, so this isn’t that kind of tired. It’s the spirit-tired of looking at plans you had and knowing they’re gone forever. That day trip to visit my family and friends in Indy, or my much-loved forays up to Lexington Ohio in July for Vintage Motorcycle Days. The bucket-list items like riding Route 66 coast-to-coast and to Alaska to see the Aurora.

Those things aren’t going to happen. Don’t mistake me: Ten minutes with Jacquelynn is more important to me than all of that combined, but that doesn’t fill the hole left by accepting their loss.

She too is feeling a similar loss. At times, I’ll catch her sobbing and she’ll explain how she misses working and that leads to the feeling that she’ll never work again. Knowing that she’s going to be on this program for the remainder of her life often makes her feel like it’s all a great waste of effort until I remind her how very far she’s come. The reminder that without this great effort, she’d most likely be institutionalized by now and not have even the slightest clue who I am, let alone be essentially destitute as well sometimes helps ground her then.

The same thought also helps ground me, too. I’m always cognizant of it, obviously, but there are occasions when all the progress seems for naught, or even to disappear entirely for several moments, and those times inevitably terrify me. So, I review my notes, or I talk to her or just hold her for a while, and I spend some short while in simple gratitude for today, for this single minute with her in my arms.

There are low ebb days.   It’s probably inescapable that there will be. Days like today when Jacquelynn can pick up so easily on my mood and despair that she comes to me on the verge of tears and says, “You just look so sad…” and I can’t do anything but agree and apologize. I just have to admit to her that I am just so, so fucking tired. And I’ll agree to her suggestion that we take a nap. And while she dozes, I’ll quietly type away…



5 thoughts on “Low Ebb

    • Thanks, Buddy. It doesn’t often feel this, but I do as I feel I must. Days like today aren’t frequent, but unfortunately, are not terribly rare, either.


  1. You are one of the strongest people I discovered. I fell like I know you through your writing. I know that words might not help here but I am sending you some positive vibes. Hope you receive them.
    Hang in there. You are stronger than you think


  2. You are a strong one Matthew, and so is she. You are both fighting for the extra day, something that all of us want, but not always willing to walk that extra mile. You give you and Jacqulyn hope, keeping standing tall and remember Rome wasn’t built ina day, and unfortunately neither are medical successes. Can only take one day at a time. 🙏🙏🙏🙏🙏


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